Socialize
Sunday
May052013

The #LHandSign Lupus Awareness Flash Mob Freeze and me.

The #LHandSign Lupus Awareness Flash Mob Freeze in LA is going viral and you can help share.  But here is a brief inside look from my point of view.

Mat asks me to get involved and help.  I say yes.  Together, we text back and forth and arrange to do a location scout.  Once in Hollywood, we find the perfect pre-freeze place to meet and then Mat starts snapping pictures.  I hear snippets of "the song" and get excited.

 

Next thing, I know I am in WDC's radio studio and on the air sharing the #LHandSign Lupus Awareness Flash Mob Freeze with his radio listeners.  It's all a blur because I was off to Washington, DC to go to TEDMED!

Here's the YouTube of me on the WDC radio show...  http://www.youtube.com/watch?v=BHqESoK5L1Q

Then on Sunday, April 28th shortly after 11AM the Lupus community of Southern California gathered for the Lupus Cloud Meet Up and at NOON for three powerful minutes in front of The Chinese Theater in Hollywood, there was silence as the #LHandSign Lupus Awareness Flash Mob Freeze happened and then Mat Simpkins, of RunningforLupus.com and creator of the #LHandSign blew the whistle and we hugged and then made our way to California Pizza Kitchen for the "after party" benefitting The Purple Rose Foundation.

Thanks to everyone who came out in LA and to you who I know by now is thinking I want to "Put my L up!" so go ahead and take a picture posing with the #LHandSign and share it online.  Instagram, Twitter or Facebook, show your support for Lupus Awareness.

Watch the video... http://www.youtube.com/watch?v=j42m7NsCrJU and "put your L's up!"

 

Sunday
May052013

Social Media Girlfriends support me and Global Lupus Awareness Month.

I was able to share and get support from Social Media Girlfriends to kick start Global Lupus Awareness Month (GLAM!)

Here is the guest post I wrote for the Social Media Girlfriends Blog.

http://socialmediagirlfriends.com/blog/amanda-lupus-lady-on-blog-talk-radio

Here is the post about my appearance as a guest of GIRLFRIENDS TALK RADIO with Dabney Porte.

http://socialmediagirlfriends.com/blog/girlfriends-talk-radio-dabney-gets-up-close-and-personal-with-amanda-greene-aka-la-lupus-lady

Thank you Dabney and the entire Social Media Girlfriends community for allowing me to open up and share my story with you.  Please follow @SMGirlfriends on Twitter.

Tuesday
Apr302013

Health Activist Challenges!

I had hoped to write more this month.  I had hopes of using the daily prompts for the 2013 WEGO Health "Health Activist Writer's Month Challenge" to inspire me to post/write more.  Instead, I was busy actually being a Health Activist! (Isn't that essentially what WEGO Health hopes?)  Since a picture is worth a thousand words, here are some glimpses into what my Health Activists activities during April 2013 looked like...

This is the "doodle" for the "Managing Chronic Diseases Better"--one of The 20 Great Challenges facing Health and Medicine addressed at TEDMED 2013.  I was invited to be a Social Media Narrator and Delegate to TEDMED!

Wearing Karen Kane at The Kennedy Center for TEDMED 2013!

As seen at TEDMED 2013: Richard Simmons and me, connecting the Great Challenges! 

Here is a screen grab of me on the TEDMEDLive Stream!  I proudly shared how Richard @TheWeightSaint Simmons is helping change my life.

This is what the screen and TEDMED stage looked like...

Exercising w/ Richard Simmons and Surgeon General Regina Benjamin on stage at The Kennedy Center during TEDMED.  (I'm behind Dr. Benjamin on the left.)

At the Air and Space Museum I met, hugged and posed with the Surgeon General!

Follow @SGRegina on Twitter.  

Another Regina...@ReginaHolliday helped make me TEDMED better because TEDMED 2013 was the first chance to I had to wear my "The Walking Gallery" to a health and medical conference.

The Hive at TEDMED was buzzing through TEDMED 2013!

My TEDMED "Six Word Story" in The Hive!

The "Smart Phone Physical" started with a look inside my ear.  Everything a doctor would need to give you a physical and track your body can be done w/ a Smart Phone!

A "virtual" look at the Ultrasound of the artery in my neck.  "Smart Phone Physical" is a great advance for doctors and medicine.  They also had a blood pressure cuff that attached to an iPhone.

After TEDMED in Washington, DC... I got back to attacking the Great Challenge of "Working Out with @TheWeightSaint" Richard Simmons' Twitter handle.

Then it was time to "Put my L Up!"

The #LHandSign Lupus Awareness Flash Mob Freeze in Hollywood!

Having fun w/ Mat Simpkins @RunningforLupus flashing the #LHandSign!

The debut of the "new" LA Lupus Lady cape after the "L Hand Sign Lupus Awareness Flash Mob Freeze"

Information from Alliance for Lupus Research at the "L Hand Sign Lupus Awareness Flash Mob Freeze."

Watch Out May 2013 - Lupus Awareness Month!!!  LA Lupus Lady is out to make you memorable!

Saturday
Apr132013

Day 13 ~ LUPUS STYLE

Health Activist Writer's Month Challenge prompt for today. Day 13 Write a health acrostic for your condition, hashtag, or username! (acrostic = a poem where every letter of a word serves as the first letter of a word or phrase i.e. DOG = Digs Others’ Gardens)

LUPUS STYLE!

Lupus is…

Lousy

Unrelenting

Painful

Ugly

and

Sucks.

Lupus made me realize… I am

Strong

Tough

Youthful

Living

and

Empowered.

Friday
Apr122013

Back to the past or look into the future?

I can't believe how much trouble I am having "dealing" with the prompts from WEGO Health this year.  I just don't want to look bad at what I was like at 15 before I got symptoms and then sick.  It is too depressing and sad.  Instead I am looking towards the future.  

Next week, TEDMED and "Great Challenges Day"

Next month, May is "Lupus Awareness Month" celebrating World Lupus Day in NYC and Walking at MetLife at the Alliance for Lupus Research Walk with Us to Cure Lupus event!

In June I'll be sharing at the #140You (formerly the #140conf aka "State of Now") a conference in New York City focusing on "Health, Wellness, Fitness and Food" more Big Apple fun!

Sometimes brevity is a good thing.  

Day 12... this Health Activist ( and lupus patient) is too busy being a Health Activist to post about being a Health Activist.  What a tremendous and awesome challenge to be dealing with.