I know what it is like to go to Washington, DC to advocate for Lupus Research. I remember the exhaustion... I remember the sore feet... and I remember why I did it. I went to our nation's capitol because over 1.5 million Americans have Lupus. Lupus is one of the lesser-known major diseases in the United States, Lupus is an autoimmune disease that effects each individual patient differently. If I was on Capitol Hill today I would be joining the team of Lupus Advocates that are meeting with members of Congress, (or more likely, a Health Legislative Aide) today to discuss the importance of funding Lupus medical research by telling my story of what living with Lupus has been like for me the past 28 years. I would tell you that it may not have been easy but it was "much better than the alternative".
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