Socialize
« World Lupus Day with Wendy Williams! | Main | Guest Post: "I love someone with Lupus." »
Tuesday
May082012

True Life Tuesday ~ Happy Lupus Awareness Month!

Happy Lupus Awareness Month! "You think you know, but you have no idea how truly excited I am to be heading to the East Coast to celebrate Lupus Awareness Month."  More specifically, I am heading to New York City for World Lupus Day and on May 12th I will be walking at MetLife Stadium in New Jersery with friends and family to support the Alliance for Lupus Research. http://lupusresearch.org/

At the beginning of May to celebrate Lupus Awareness Month, the ALR started a tumblr page and I am doing cartwheels (not literally) and jumping for joy (literally) Tumbling is fun and another way to connect using Social Media, follow the ALR tumblr page.   http://allianceforlupusresearch.tumblr.com/  World Lupus Day (May 10th!) is the one year anniversary of the ALR's "Get In On It" campaign.  Use the #GerInOnIt when you are on Twitter and head to the Alliance for Lupus Research Facebook Page and "Like" them today. https://www.facebook.com/#!/allianceforlupusresearch

Personally, to share that "Lupus Awareness is Fun" this Lupus Awareness Month I started a Facebook Page https://www.facebook.com/#!/LupusAwarenessIsFun I hope you like it.  I am still figuring out how the Facebook Page will grow and develop, but together the community will help.  I was really inpsired to create my Facebook Page after seeing the power of the Facebook Pages of the Alliance for Lupus Research and WEGO Health.

WEGO Health was the reason I blogged every day in April, they support the Health Activist Community and this post is their fault.  Thank you just doesn't cover it so to help me thank me. Like the WEGO Health Facebook Page https://www.facebook.com/#!/wegohealth  Did you catch the #HAroundtable for @wegohealth that @TiffanyAndLupus and I had to shine the spotlight on the Lupus blogging community.

This Sunday marked the first ever #LupusChat on Twitter.  @Lupus_Chat is moderated by @TiffanyAndLupus.  I was happy to be a part of the premiere chat and look forward to future chats.  Let's talk about Lupus.  The next chat is Sunday, May 13th at 3pm EST/12pm PST topic will be talking coping with Lupus and Motherhood issues in honor of Mother's Day. https://twitter.com/#!/Lupus_Chat

Thanks to everyone who is participating in sharing Lupus Awareness around the world.  I am grateful to the #chronicallyawesome @julianna12369 on Twitter of http://www.whatthejules.com/ and hubby @SteveLeblang who got Lupus Awareness Month started right with a wonderfully emotional guest post.

Lupus Awareness is Fun. Lupus is Not.

Happy Lupus Awareness Month!

Amanda

Reader Comments (1)

Happy to join in and learn more about Lupus. I have had it for 23yrs. With the treatments are changing I believe that we learn more and share more no matter how long we've had. And, face, we support eachother best because not everyone "gets it" terri

May 17, 2012 | Unregistered CommenterTerri Mauro

PostPost a New Comment

Enter your information below to add a new comment.

My response is on my own website »
Author Email (optional):
Author URL (optional):
Post:
 
Some HTML allowed: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <code> <em> <i> <strike> <strong>