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Sunday
Feb172013

Lady Gaga's gift to me.

I never mean to neglect my blog but somehow it is March 28, 2013 and the last post was from 12/12/12 though you can usually find me online tweeting as @LAlupusLady or on Facebook.  I have gotten over the self-imposed guilt of what it felt like to neglect writing this blog.  I've done some clearing work and meditations have been chanted.  I feel that I've cleared the path for a new self-imposed challenge.  I know that there will be days that I don't hit my target but at least the bullseye is in sight. (My apologies for the archery reference but my 14 year old niece is taking aim at her goals of being like Jennifer Lawrence in the Hunger Games and I enjoy the play on words.)  Often when you live with lupus, as I do.  Life makes other plans and so I made it through the holidays and began 2013 with a few goals for January, and the rest of the year.  I've learned to be flexible as the pain and struggles of making it through the winter are not easy.  Even winter in Los Angeles, can impact my joints and body pain.  Let's leave the pain behind...

Today is @LadyGaga 's 27th Birthday and I am posting a blog to celebrate.  While it may not seem like much to you it is huge to me.  I have wanted to share the joys of the Born This Way Ball with you long before the Born Brave Bus was parked across from Staples Center on January 20th!  I have accepted a new challenge and will be participating in WEGO Health's Health Activist Writer's Month Challenge (#HAWMC on Twitter) and didn't want to wait until April 1st to post my first blog of 2013.  So I am using Lady Gaga's Birthday as a reason to post now/today.

~~~~

In January, I had a mission.  I wanted to be able to enjoy/dance and sing with Lady Gaga at Staples Center for two nights in a row.  That may not seem like a big deal to most people, especially if you call yourself a "Little Monster" but to a 45 year old woman with Lupus.  I had to prepare for the "Born This Way Ball" in Los Angeles.  I would have to "ramp up to ramp down to ramp up".  I had to find a balance of building my endurance and resting my body.  So I headed back to Slimmons in Beverly Hills, to get me ready for the Born This Way Ball and for $12 you get a full hour and a half work out and literally "Sweat with Richard Simmons" from aerobics and weights to getting on the floor. Richard kicked (and continues to kick) my ass.  

The music was a powerful motivator.  I listened to "Born This Way" three times a day and moved to the music,  And I took time to rest.  That was almost harder than the work outs with @TheWeightSaint (Richard's Twitter handle!)  After close to 30 years of living with lupus, I still have difficulty slowing down and relaxing, even though I know it is best for me.  [March 23, 2013 marked the 30th anniversary of my diagnosis with Systemic Lupus Erythematosus.]

This quote from Havelock Ellis celebrates the essence of what I call Lupus Style.  "All the art of living lies in a fine mingling of letting go and holding on."  Releasing just a control, helps me find the balance.  

When I got the email telling me about the Born Brave Bus joining the tour.  I knew this was going to be a special 48 hours.  I wanted to scream with delight when I saw the Born Brave Bus for the first time.  Since a picture is worth a thousand words... 

 http://pinterest.com/lalupuslady/born-brave-bus/ 

"When you become part of something, in some way you count. It could be a march; it could be a rally, even a brief one. You're part of something, and you suddenly realize you count. To count is very important." Studs Terkel

http://pinterest.com/lalupuslady/born-this-way-ball-in-la/

To honor Lady Gaga @ladygaga I supported the Born This Way Foundation with a gift of $27 to celebrate her 27th birthday and to celebrate 30 years of living with Lupus I (finally) posted a blog in 2013!

Happy Spring!

Hugs and Health,

Amanda

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  • Response
    Response: bestdissertations
    Lady and all traits of the female gender are shown and portrayed. It is the embedded and instilled with the future ting and elements it is the imposed and constituted with the right and fundamental rightness. It is the opposed and constituted. The sequences of the life are measured and ensured. ...
  • Response
    Response: Facebook Lite Apk

Reader Comments (1)

Amanda,
You are my hero! You light up the stage and my twitter stream! Thank you for sharing your joy and hope. I look forward to reading your writings and to seeing you in June for #140conf 2013.
Hugs,
Joyce

March 28, 2013 | Unregistered CommenterJoyce Sullivan

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