It’s April--time for another Health Activist Writer’s Month Challenge, also known as #HAWMC on Twitter for WEGO Health. The challenge is to write 30 posts in 30 days. So let’s get it started--why do I write about my life with lupus?
I write about lupus (my primary presenting disease is Systemic Lupus Erythematosus) but I also have Antiphospholipid Syndrome, Fibromyalgia and Rheumatoid Arthritis. Emma Lazarus either said or wrote “I am never going to write for the sake of writing.” I suppose I agree with her. Unless prompted by a challenge to discuss why I write and share (some would say overshare!) my health online, I find that my “microblogs” on Twitter and status updates on Facebook are enough. But, as I have learned by participating in last year’s WEGO Health’s Health Activist Writer’s Month, getting it out there and putting it out helped me move forward as a patient/advocate and activist.
It was for a post last April-- the prompt had something to do with “writing style”-- before I knew it I had created a reflection of how I deal with my disease. I wrote about “Lupus Style” in a way that was originally intended to mirror the “look of the day” that many fashion bloggers post. Of course as a Lupus patient my looks included my fuzzy socks and comfy purple robe! Now it is with pride that I share “Lupus Style” whenever I can.
Emma Lazarus’ writing inspires me and it is fitting that I am using her words to help inspire mine as I begin the 2013 HAWMC. She is more famous for the quote “Give me your tired, your poor, your huddled masses yearning to breathe free.” (the poem that can be found at the base of the Statue of Liberty). While she wasn’t talking about the challenges that the Health Care system faces and that TEDMED is addressing, I find that her words lift my spirit. “Lupus Style” is about finding the flair and avoiding a flare. Here’s to another 30 posts for WEGO Health who knows what I will discover and share with you. #HAWMC Day 1: done.