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Saturday
Apr062013

Champion for Lupus Awareness!

Toni Braxton has taught me that when living with Lupus "there are good days and bad days".  Much like the day that Toni Braxton told the world that she had lupus,  I feel that today was "a good day!"

Together with Mat Simpkins we scouted the Hollywood location for the "L Hand Sign Lupus Awareness Flash Mob Freeze" to be held on April 28th! Then, after a nap, I registered for TEDMED 2013!  I've been invited to attend TEDMED on April 19th for "Great Challenges Day" as a Social Media Narrator.  I am beyond honored and excited by this opportunity.  

Before I look forward... let me take a step back and share a "Lupus Awareness" community YouTube project that was inspired by Toni Braxton's empowering quote "This is what lupus looks like".  http://www.youtube.com/watch?v=PX0vS45ntsg&list=UUSeFWMKJBTB5yL9fEHyU9kg&index=8   The progress and forward strides the Lupus community are making together never cease to overwhelm me.  Mat said it best today as we drove across Los Angeles:  "Teamwork makes the dream work."  I am proud to continue my journey and share that "Lupus Awareness is fun!"

Please pardon my brevity, but as anyone living with lupus will tell you sometimes you have to make choices and prioritize.  Happily, I am not neglecting the WEGO Health "30 posts in 30 days" challenge, but I am living up to my end as a "healthy" Health Activist by being honest with you and with myself about my physical limits before I reach the point of flare.  That is what living with "Lupus Style" is after all - discovering the flair.  The teams have played, March Madness became the Final Four (now the Final Two) and though it is almost midnight East Coast Time I feel like a true champion for Lupus Awareness.

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Reader Comments (1)

Thanks for all you do!! I really appreciate it.

April 7, 2013 | Unregistered CommenterDale

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