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Sunday
May052013

The #LHandSign Lupus Awareness Flash Mob Freeze and me.

The #LHandSign Lupus Awareness Flash Mob Freeze in LA is going viral and you can help share.  But here is a brief inside look from my point of view.

Mat asks me to get involved and help.  I say yes.  Together, we text back and forth and arrange to do a location scout.  Once in Hollywood, we find the perfect pre-freeze place to meet and then Mat starts snapping pictures.  I hear snippets of "the song" and get excited.

 

Next thing, I know I am in WDC's radio studio and on the air sharing the #LHandSign Lupus Awareness Flash Mob Freeze with his radio listeners.  It's all a blur because I was off to Washington, DC to go to TEDMED!

Here's the YouTube of me on the WDC radio show...  http://www.youtube.com/watch?v=BHqESoK5L1Q

Then on Sunday, April 28th shortly after 11AM the Lupus community of Southern California gathered for the Lupus Cloud Meet Up and at NOON for three powerful minutes in front of The Chinese Theater in Hollywood, there was silence as the #LHandSign Lupus Awareness Flash Mob Freeze happened and then Mat Simpkins, of RunningforLupus.com and creator of the #LHandSign blew the whistle and we hugged and then made our way to California Pizza Kitchen for the "after party" benefitting The Purple Rose Foundation.

Thanks to everyone who came out in LA and to you who I know by now is thinking I want to "Put my L up!" so go ahead and take a picture posing with the #LHandSign and share it online.  Instagram, Twitter or Facebook, show your support for Lupus Awareness.

Watch the video... http://www.youtube.com/watch?v=j42m7NsCrJU and "put your L's up!"

 

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Reader Comments (3)

Thank you so much for doing all you did, speaking out for us lupus warriors. "I'm a survivor" too. I am so sad my stomach took me over. I literally drove to L.A., got sick, and drove home. I thought I would feel sorry for myself for missing out on meeting everybody (which I still hope to do someday). However, upon watching the video, I was overwhelmed by feelings of comradeship with one of the strongest communities in the world, the lupus community. Yes I was brought to tears, but not tears of sadness, tears of joy and pride. I will continue to support each of us by throwing up my L and spreading the word everywhere possible. I love you all. oxo Chrissy D - Lupus Cloud

Ms. LaLupusLady,
I was diagnosed with Lupus 8-2-11. I have some very personal back round information and some questions to ask would you please email me so that I can get some advice from you?
Sincerely,
Stuck in a Rut

November 14, 2013 | Unregistered CommenterStuck in a Rut.

I am so much excited after reading your blog:)

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