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Entries in Alliance for Lupus Research (26)

Thursday
Nov102011

Let's about Lupus! Walk with me!

Dear Friends, Family and Loved ones,

It is that time of year again to rally up my friends and family to participate and support me in the Los Angeles Walk with Us to Cure Lupus. Thank you for all your support.  In these tough economic times, I need you more than ever! Every donation helps to fund valuable lupus research – every dollar counts!

Your continued support to the Alliance for Lupus Research (ALR) has enabled the ALR to commit almost $65 million to cutting edge lupus research.  As of 2009, that money has helped to fund 12 new drugs in clinical trials. After decades with no new treatments, the ALR is proud to have been a catalyst for this increased attention to lupus research and they will continue aggressive efforts until new therapies are brought to market.

This amazing progress that the ALR has made keeps me more determined than ever, so please join me and my team at this year’s LA’s ALR Walk!  If you are unable to attend, I hope that you will consider sponsoring me in this effort.  Remember, 100% of your donation goes directly to research!  All checks should be made payable to the Alliance for Lupus Research.  Join or donate online by supporting my “Lupus Awareness is Fun!” team, click on the link...just do it!

http://walk.lupusresearch.org/site/TR/WalkwithUs/Walk2010JasperRedesign/484458840?team_id=62434&pg=team&fr_id=2770

28 years of living with Lupus has given me a keen awareness of the incredible, enduring value of friends and family.  I no longer take anything for granted and cherish everyday life has to offer. 

Thank you in advance for your support to fund research for this devastating disease that I and many others live with every day.  Each step we take brings us closer to a cure and a world without lupus!  Please help, every donation is gratefully appreciated.  Thank you so much.

Warmest regards,

Amanda Greene aka “LA Lupus Lady”

Follow me on Twitter @LAlupusLady

Friend me on Facebook L.A. Lupus Lady

Read my blog www.lalupuslady.com

Monday
Nov072011

Let's talk about the ALR Lupus Walk...

The morning of November 1st, there I was waiting in the lobby of 5900 Wilshire drinking a Naked Juice Smoothie recovering from Halloween the night before and waiting Laurie of the Alliance for Lupus Research who was to join me.  When my phone rang and Laurie told me she had a flat tire and would be unable to join me for the interview to promote the LA "Walk with Us to Cure Lupus" event.  (Was this some sort of belated Halloween prank? I thought to myself.)  Thankfully Laurie is safe, but I had to represent the Alliance for Lupus Research on The Sound LA's Public Affairs Show "5900 Wilshire" alone.  I had just gone trick or treating for the ALR as "LA Lupus Lady" but this was entirely different.  I am feeling more than a little judgemental about my first radio interview.  As I say "Lupus Awareness is Fun, because it is important."  I only hope that I conveyed the details with passion, enthusiasm and professionalism.  You be the judge...

Here is the link to my portion of 5900 Wilshire program that aired yesterday on The Sound ~ Amanda "LA Lupus Lady" Greene promoting the upcoming Alliance for Lupus Research "Walk with Us to Cure Lupus" taking place on November 12, 2011 at Crescent Bay Park in Santa Monica.  The walk takes place on a paved walkway along the sand and Pacific Ocean.  This Saturday will be a great day at LA's "Walk with Us to Cure Lupus" event!

https://mail.google.com/mail/?ui=2&ik=d36cb864e1&view=audio&msgs=1337f313b767b4a4&attid=0.1&zw

 

Here is the link to the Alliance for Lupus Research

http://www.lupusresearch.org/

Here is the link to join/support "Lupus Awareness is Fun!" my LA Walk team...

http://walk.lupusresearch.org/site/TR/WalkwithUs/Walk2010JasperRedesign/1646313957?pg=team&fr_id=2770&team_id=62434

My favorite thing about the Alliance for Lupus Research is that 100% of every donation goes directly to funding Lupus Research.  Thank you for supporting me, my blog and if you can, the ALR.  Together, we will find a cure.

Stay Warm.

Hugs,

Amanda

Tuesday
Nov012011

Happy November!

Yesterday, I "trick or treated" for the Alliance for Lupus Research... I dressed as "LA Lupus Lady" a caped crusader for Lupus Awareness.  I figured there was no better costume for Halloween and I sought donations for "Lupus Awareness is Fun!" my walk team.  The LA "Walk with Us to Cure Lupus" Alliance for Lupus Research Walk is taking place on November 12th and I thought that "trick or treating" for Lupus would be a great way to jump start my not so subtle countdown to the walk.

So I went to my doctor's office with posters promoting the upcoming walk in my "LA Lupus Lady" costume and asked for support.

This morning I went to The Sound FM to represent the Alliance for Lupus Research on the Public Affairs program 5900 Wilshire! Talking about the details of the Lupus Walk with Us to Cure Lupus event was fun but sharing that 100% of every donation to the Alliance for Lupus Research directly funds Lupus Research was my favorite part of the interview.  

Though I didn't wear my cape to the radio interview, I channeled my Lupus Awareness crusader and shared my pasion.  Happy November!

If you want to support or join my team, it is as easy as clicking the link. http://walk.lupusresearch.org/site/TR/WalkwithUs/Walk2010JasperRedesign/12853125?team_id=62434&pg=team&fr_id=2770

Monday
Oct102011

Living with Lupus and Sports!

Everyone tries to avoid undue stress, but as a Lupus patient who can experience stress-induced “flares” I find it hard to escape the fact that when I am looking for relief from the pain of living with Lupus by watching my favorite sports teams, in fact, I sometimes can experience grief and heartache by doing so.

As I am both living with Lupus and a sports fan, I am always looking to find balance in my life.  Managing to avoid flares is a challenge of my daily life--so why then did I choose to become a passionate sports fan?   It wasn’t by choice.   I went to college in San Francisco and one way to meet heterosexual men was at a sports bar on Sundays during 49ers games.  I quickly developed a love for football and a crush on Steve Young, their quarterback.

After graduation, I left San Francisco.  With my Lupus under control, watching football on Sundays became a ritualistic way to celebrate physicality with my team.  I started doing what I now call my “Off the Couch” work-out; doing jumping jacks every time my team scored!  Steve Young has been off the playing field for more than a few years, but I still root for the 49ers. 

Loving football even helped me land my husband.  On our first date, my knowing what fantasy football was helped me get the second date.  During our engagement, I often told him “that I don’t even like baseball”.  Hubby grew up in Queens; his heart belongs to me and the Mets.  Marrying a guy from New York who is a self-proclaimed die-hard “sports geek” was easy.--learning to like baseball was a bit harder, but eventually I did.   While watching Derek Jeter’s now legendary diving catch into the stands against the Red Sox in July 2004, I got hooked.  That day, I became a Yankee fan for life. 

When instead of having children we got a cat, we named him Bernie Williams, after the Yankee player.  (Hubby says that while he’s a Mets fan he’s also a realist, and the Yankees had far more deserving talent to name pets after!)  Earlier this year, Bernie Williams, the cat, died.  (one of the reasons  I had not posted a new blog this summer.)  For some reason, I thought that the Yankees would win the World Series in honor of our cat.  However, late last week, the Yankees were eliminated and they are no longer in the playoffs.  Watching the Yankees get eliminated was stressful and not good for my Lupus.

Now, I thought, I can at last concentrate on my favorite sport and teams.   Football and my new favorite team, the New York Jets and a new kitten--named for Jets coach Rex Ryan!  Unfortunately, the Jets have lost the last three weeks-- which got me thinking about this post in the first place.  That’s when I found this article pondering the issue of when cheering for your favorite team could be bad for you. http://www.insidershealth.com/article_print/could_being_a_sports_fan_be_hazardous_to_your_health/1204

Thanks to the article, I know what precautions to take before, during and after every game.  Thanks to Woody Johnson, owner of the New York Jets, I know that whether the Jets win or lose, he strongly supports another team:  the Alliance for Lupus Research, an organization that he started and funds to support Lupus Research.  (You can learn more about the ALR at http://www.lupusresearch.org/ ).  Did you know that on October 23rd, the Jets with be holding Lupus Awareness Day as they host the San Diego Chargers at Met Life Stadium?  Raising awareness and funds for Lupus Research, go team! 

But despite the potential dangers to my health, I will never stop rooting for a winning season!  Go J-E-T-S JETS! JETS! JETS!!!

Saturday
Mar052011

Alliance for Lupus Research Mobile Giving!

There are a lot of great activities and Lupus awareness projects coming from the Alliance for Lupus Research.  Tomorrow is the first day when the mobile giving campaign will be up and running for the ALR, I can't wait to tell you about the great news - especially if you live in the Boca Raton or Chicago areas.


Sunday March 6, 2011 I am excited to share that the Alliance for Lupus Research mobile giving campaign will take place during the Boca Raton Walk.  Text the word "WALK" to 85944 to make a $10 donation Forward this information to all your friends so that they can help too.


Can’t make it to the Walk? Any text donation made between Sunday, March 6, 2011 and Sunday March 13, 2011, will be credited towards the 2011 Boca Raton Walk. It’s quick, it’s easy, and it’s fun. Help the Alliance for Lupus Research lead the way to find a cure for lupus!


This Sunday (March 6, 2011) is the Alliance for Lupus Research Chicago Wolves’ Lupus Awareness Hockey Day against the Manitoba Moose at the Allstate Arena in Rosemont. The game starts at 3:00 p.m. with doors opening at 2:00 p.m. Before the game, be sure to stop by the ALR table in the concourse and enter our raffle to win an Anthony Stewart game worn jersey.


For every ticket purchased, $3.00 will be donated to the Alliance for Lupus Research.
In the Chicago area but you can't make it to the game, be sure to watch it on WPWR Channel 50. 11 year old Chicago Walk family volunteer, Gus Kalivas, will be dropping the puck at the beginning of the game!


The Alliance for Lupus Research will also be holding their mobile giving campaign during the game on March 6, 2011  Text the word "Lupus" to 85944 to make a $10 donation or text "ALR" to 85944 to make a $5 donation. Any donations that are texted on March 6, 2011 to the ALR will be credited towards the 2011 Chicago Walk.  It’s quick, it’s easy, it's fun. Help the Alliance for Lupus Research lead the way to find a cure for lupus!  


A one-time donation of $10 will be billed to your mobile phone bill.  Messaging & data rates may apply.  Donations are collected for the Alliance for Lupus Research by mobilecause.com.  Reply STOP to 85944 to stop. Reply HELP to 85944 for help.  For terms, see www.igfn.org/t. All donations made through this program go to the specific Walk and not towards a specific team.  Alliance for Lupus Research
If you have any questions please feel free to email haldama@lupusresearch.org.