I write about and share my story of living with Lupus because I feel that "sharing is caring" and I strongly believe that Lupus Awareness is Fun! I share that "Lupus Awareness is Fun!" because Lupus Awareness is important. By putting Lupus Awareness in a postive light and sharing that it can be fun I hope to shine a spotlight on the facts and resources that are currently available to Lupus patients. I want to help raise Lupus Awareness because it is important. By sharing (and proving by example) that "Lupus Awareness is Fun!" my aspirational goal is to help the Lupus community; in reality when I write, tell my story and share my journey I am helping myself, if I can help others along the way - that is a bonus!
Every Lupus patient is unique and has a different perspective of what living with Lupus is like for them. My Lupus journey may be (and probably is) unlike another Lupus patient, but my hope is that some of the strength I find in sharing my story can reach beyond words on the computer screen. I write about my health focus because when I was first diagnosed almost 30 years ago, there was little information available to Lupus patients. I write about Lupus because if I can share that there is hope after diagnosis, I will. I write about Lupus because there is a chance (a small chance but a chance...) that my story of living with Lupus can help a new "Lupie" (Lupus patient) realize that it is possible to live a full and joyful life despite being diagnosed with a chronic autoimmune illness, with a funny name. I write about Lupus because if I can demonstrate by reflection that "Lupus Awareness is Fun!" perhaps I can impact the way Lupus patients are perceived in the world.
*This post is apart of my contribution to the 2012 WEGO Health #HAWMC Health Activist Writer's Month Challenge. The prompt for today is "I write about my health because… Reflect on why you write about your health for 15-20 minutes without stopping."
Sharing is caring, that's why I write about Lupus!