"The Fashionista Files: Adventures in Four-Inch Heels and Faux Pas" by Karen Robinovitz and Melissa De La Cruz probably is not the kind of book that WEGO Health was expecting me (or any health blogger) to write about when they suggested writing a book report for Day 13 of National Health Blog Post Month but this book is perfect choice for me to reflect about the beginning of "Lupus Style".
Being a "fashionista" is much like living with a chronic illness. No one seems to understand you and what you are thinking when you make seemingly outlandish lifestyle choices because you"have" to. I think it was two ideas from the book that impacted me most. First, it didn't matter whether she wears "K-mart or Chanel", the fashionista is comfortable in her skin. Then, a fashionista accepts and loves her body -- no matter what the size, a girl should "love her thighs". Those ideas sparked me to think about "Lupus Style" and discovering that despite life with lupus, I am able to celebrate and accentuate the positive.
When living with lupus, each patient is unique like a snowflake -- or a fashionista who too can be a chameleon boho chic one day, urban hipster the next. I couldn't help but relate to the fashionista horror stories of feeling like an outcast when dressed in a "don't" to the days when I was first diagnosed. The tales of learning self-acceptance and confidence were not lost on me and helped me as I discovered my "flair" and that's when I started becoming active on Social Media in the lupus community.
The journey and joy of the book continued as I became a "Brand Ambassador" for Karen's cosmetics brand Purple Lab and came up with the name for "Pearlesque Show" a primer w/ crushed pearls inside. When I first heard that my idea sparked with Karen, I couldn't contain my joy. One of my bucket list items was coming true! As a little girl, I thought it would be the best job in the world to name nail polish and lip gloss shades. Here I was, thanks to Twitter and Facebook, helping Karen and Purple Lab create a new product. It was "beyond" description.
By learning from the best--both Karen and Melissa-- I have become comfortable in my skin and my style of sharing that "Lupus Awareness is fun, but lupus is not." Who knows where I would be right now if I hadn't read "The Fashionista Files" and "How to Become Famous in Two Weeks or Less". Thankfully, we will never know!
Follow @KarenRobinovitz and @MelissadelaCruz and the hashtag #LupusStyle respectively.